It's been a while since I updated my blog. I finished one degree and went straight into grad school so time has been sparse. The question I always get asked is "how are you?". If I have to answer honestly, I would say I'm sick. What I struggle with is the hormone imbalance more than anything else, with the pain being a close second. I was recently told that my endometriomas have grown back which is very disappointing and would explain perhaps the symptoms I've been experiencing. My periods hav...

From desperation to belief

Ladies, it's been a long time since I have updated this page. I want to apologize to those of you who may have written to me and did not receive a reply. It's been a traumatic year. My job has become even more difficult and demanding, I have been completing my degree, I went through a divorce and my health has taken a sharp decline. My dedication to helping solve this disease had waned and I had become victim to complacency. Somehow I felt that this disease was just...

I get a lot of emails asking me for an update so I thought it was time that I did one. I had my surgery with Dr Robbins in 2007, and he found extensive stage 4 disease. I had a radical pelvic wall resection, release of embedded ovary, removal of chocolate cyst, and excision and repair of uterine ligaments. My main problem going into surgery was that I was having severe nerve pain in my coccyx every time I stood up, as well as pelvic distortion from the progressive disease process. Overall my su...

I was diagnosed with Endometriosis in December 2006. I know now that I have had this disease for a lot longer than that...maybe even 20+ years, but I just didn't know it. Of course eventually it will make you notice it and that's when you start to seek treatment. I have Stage lV disease, and severe Adenomyosis. I have had three laparoscopies and a radical excision of my pelvic wall and reconstruction of my ovary. The reason why I had three surgeries? For the precise reason I am making this webs...